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"Excessive Neglect vs Excessive Force"

Recently there was significant news coverage on the tragic and extremely unfortunate death of a young man with autism in a Des Plaines group home.  While the circumstances still remain cloudy, a group home employee called police to report being assaulted by a resident with autism and the resident died after being tasered and subdued by responding police officers.  While not associated with Avenues, this disastrous outcome is a major cause for concern in all of our group homes. Additional review and examination of the circumstances leading to his death are especially warranted.  However, once completed, I am sure the findings will prove that not only was excessive force to blame, but excessive neglect as well.  

Robert Okazaki, Executive Director

Family and professionals who are knowledgeable about persons with developmental disabilities are shocked over any response that could lead to an outcome as terrible as this.  Rigorous, independent research on shock devices as non-lethal weapons needs to be undertaken.  Training first responders in the art and science of de-escalating aggressive behaviors exhibited by persons with developmental disabilities is a must.  Equally as important, will be an examination of why the police had to be called; and how Illinois’ “excessive neglect” is responsible for creating the circumstances that allowed this tragedy to take place.   

While I know most officers to be concerned and caring individuals, many are not specialists in the numerous social and domestic issues that are unfortunately a part of the work they do everyday.  For society to expect police to take the place of professionals trained to work with individuals who have autism, Down’s Syndrome, mental retardation and other developmental disabilities is unthinkable.  Use of police officers as back-up staff in group homes is not a viable strategy.  Unfortunately, excessive neglect from the state is fast making public safety officers de-facto group home employees throughout Illinois.  

Nationally, our state ranks 43rd in funding of community developmental disability programs and 40th in the percentage increase of new disability funding during the past two years.  Over the past 20 years, Illinois’ excessive funding neglect suppressed wages and benefits in community provider organizations.  Community organizations now face tremendous difficulties in hiring, training and retention of qualified support staff.   

As a comparative example, Illinois state employees providing similar services in institutions have a salary and benefit package that is 15% to 25% higher than those at Avenues and other community organizations.  In the face of this competition for talent, all community agencies have had to reconsider their standards for employment.  Despite the dearth of resources, community organizations have done a stellar job of maintaining their programs.  However, there is a limit to what can be done.   

This recent group home death is yet another “wake up call” for Illinois to reverse its trend of neglect.  If Illinois were to improve resources to just the national average, calling 911 would not have to be a common occurrence.     

Lost in this frenzy are the more numerous accounts of simple concern and heroism on the part of public safety professionals toward individuals with disabilities everywhere.  Let us hope that no one else has to pay the ultimate price for any future excessive neglect.  Illinois can and should provide the resources needed to improve conditions for all its citizens with developmental disabilities.   

(this article was printed in the Daily Herald, December 8th, 2005.)

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